The Tubie Diaries

Next week Grayson will return to hospital in London for an operation, we don't know yet whether we will be in for 3 days or 13 but what we do know is when he leaves he will have a PEG feeding tube.

What's a PEG ?

Percutaneous endoscopic gastrostomy (PEG) is an endoscopic medical procedure in which a tube (PEG tube) is passed into a patient's stomach through the abdominal wall, most commonly to provide a means of feeding when oral intake is not adequate (for example, because of dysphagia or sedation).

This will not at present be Grayson's only source of food supply, we are still going to be feeding him orally, but the tube is likely to be used each and every day.Back in January when the decision was made that he needed a tube just to keep his organs from failing I started a series of videos on YouTube called the Tube Diaries, part 2 has just gone live today and is below.

We thought this may help someone in our situation at a later date, as well as give an insight to the people on line who continue to love and care for Grayson.

I would love to hear from families who have tubes with any tips or tricks I need to know, I think parents always seem to know more than Doctors and Nurses.

I am also thinking of doing a Q&A video for anyone who may have that burning question, if you do please leave them below or ask me on line.

Thanks for the continued support.


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